Caring for someone with AML

Dorcas Hills

April 2, 2024

Patient-led session: Extending remission – the effects of longer-term treatment for AML

Ralph Hills

November 20, 2023

Community meeting Q&A

November 20, 2023

Expert-led session: The transplant process – what to expect, and how to manage the impact

Charles Craddock

November 20, 2023

Provision of and access to wellbeing and mental health support

Vanessa Marais

August 25, 2023

Introduction and background to health inequality

Zack Pemberton-Whiteley

August 25, 2023

Social isolation and the impact of social support on survival

Rachel Saks

August 25, 2023

Quality of life of caregivers, family, and friends (including patients' self-perceived burden)

Ralph Hills

June 19, 2023

Provision of patient information (treatment options, self-care, emotional & community support)

Lise-lott Eriksson

June 19, 2023

What three pieces of advice would you give to a person who just learned of their AML diagnosis?

Ralph Hills

March 24, 2023

Practices to manage mental health during different stages of AML (part 2: treatment and recovery)

Vanessa Marais

March 23, 2023

Practices to manage mental health during different stages of AML (part 1: diagnosis and prognosis)

Vanessa Marais

March 23, 2023

Do you feel that self-care measures aid in managing the side effects of chemotherapy? And if so how?

Erik Aerts

March 21, 2023

How would you advise other patients with AML to approach remission from a self-care perspective?

Anna Mamwell

March 21, 2023

Can you please share what strategies, if any, you used to deal with the news of an AML relapse?

Lizzie Dean

March 21, 2023

What was your experience during AML treatment? What were the most challenging parts of it?

Lizzie Dean

March 21, 2023

What practices can patients use to help their mental health through the stages of their AML journey?

Melanie Stachelski

March 21, 2023

Can you please share what strategies, if any, you used to help deal with the news of an AML relapse?

Pål Eriksen

March 20, 2023

Do you feel that self-care measures aid in managing the side effects of chemotherapy?

Charlotte Tottman

March 20, 2023

Why is it important to take part in AML World Awareness Day 2023? Reason five

March 14, 2023

Why is it important to take part in AML World Awareness Day 2023? Reason four

March 13, 2023

Why is it important to take part in AML World Awareness Day 2023? Reason three

March 12, 2023

Why is it important to take part in AML World Awareness Day 2023? Reason two

March 11, 2023

Why is it important to take part in AML World Awareness Day 2023? Reason one

March 10, 2023

What is it like to participate in a clinical trial?

Karen-Sue Carlson

January 25, 2023

Experience of participating in a clinical trial

Ralph Hills

January 23, 2023

How are clinical trials designed to maximize inclusivity & provide data about a variety of patients?

Ian Thomas

December 19, 2022

Will it be possible to treat AML with oral tablets?

Farhad Ravandi

October 17, 2022

What are mutational patterns, and do they affect outcomes of patients with acute myeloid leukemia?

Brian Huntly

August 2, 2022

What are targeted therapies and when can they be used in the treatment of acute myeloid leukemia?

Jordi Esteve

July 22, 2022

When should patients being treated for acute myeloid leukemia get a COVID-19 vaccination booster?

Luis-Esteban Tamariz-Amador

July 1, 2022

What treatments are available for older patients before a stem cell transplant?

Nicholas Short

June 30, 2022

What is being done to treat stem cell transplant complications with regards to gut bacteria?

Erik Thiele Orberg

April 21, 2022

How do gut bacteria affect the body’s immune response?

Erik Thiele Orberg

April 21, 2022

Why is it important to maintain a healthy diet during treatment?

Katie Walker

April 21, 2022

What do we know about how a stem cell transplant impacts gut bacteria?

Erik Thiele Orberg

April 21, 2022

Could healthy donor gut bacteria be used to treat stem cell transplant (SCT) complications?

Erik Thiele Orberg

April 21, 2022

In your clinic, what foods do you recommend patients with acute myeloid leukemia should eat or avoid post transplant?

Katie Walker

April 21, 2022

How can diet support a good transplant outcome?

Zinaida Perić

April 13, 2022

What are the possible side effects of immune therapies for acute myeloid leukemia?

John F. DiPersio

April 7, 2022

What new treatments are there for relapsed acute myeloid leukemia?

Jorge Sierra

March 14, 2022

What does real-world data tell us about frontline therapy with CPX-351 vs Ven + Aza?

Alexander E. Perl

January 21, 2022

Should COVID-19 vaccination be postponed after acute myeloid leukemia therapy?

Sabine Haggenburg

January 6, 2022

Do patients enrolled in clinical trials really represent the acute myeloid leukemia population?

Mycal Casey

December 17, 2021

How could new immunotherapy treatments in acute myeloid leukemia change current practice?

Amir Fathi

September 24, 2021

What is MRD and why is it important in acute myeloid leukemia?

Jacqueline Cloos

September 21, 2021

How has acute myeloid leukemia treatment for elderly people changed in 2021?

Tapan Kadia

September 21, 2021

How does your genetic makeup affect how your acute myeloid leukemia is treated?

Agnieszka Wierzbowska

July 5, 2021

Intensive chemotherapy, are there any other options?

Isolda Fernandez

June 25, 2021

The challenges patients face during intensive induction therapy

Thomas W. LeBlanc

June 21, 2021

How does COVID-19 affect the outcomes of patients with acute myeloid leukemia?

Olga Gavrilina

June 18, 2021

Could cellular therapy be a new treatment for childhood acute myeloid leukemia?

Hui Zhang

June 17, 2021

How can we detect acute myeloid leukemia earlier?

Chris Hourigan

June 11, 2021

What challenges do patients with acute myeloid leukemia in complete remission face?

Norbert Vey

March 31, 2021

How has COVID-19 impacted transplantation in clinical practice?

Hayley Leonard

March 29, 2021

Why is self-advocacy so important for someone diagnosed with acute myeloid leukemia?

Stacey Koleszar

January 13, 2021

Why is genetic testing key following an acute myeloid leukemia diagnosis?

Jeffrey Lancet

January 6, 2021

Does race affect treatment outcome in acute myeloid leukemia?

Ann-Kathrin Eisfeld

January 6, 2021

What is personalized medicine?

Agnieszka Wierzbowska

January 6, 2021

What is MRD and when should it be tested?

Danielle Hammond

January 6, 2021

What treatment strategies are used in relapsed acute myeloid leukemia?

Curtis Lachowiez

January 5, 2021

How can you overcome the anxiety of an acute myeloid leukemia diagnosis?

Sandra Kurtin

December 17, 2020

What’s new in immunotherapy for acute myeloid leukemia?

Naval Daver

December 15, 2020

Advice on facing an acute myeloid leukemia diagnosis from a specialist nurse

Erik Aerts

December 15, 2020

What are the benefits & risks of avoiding high-dose chemotherapy?

Jacqueline Garcia

December 7, 2020

Advice for patients with acute myeloid leukemia on how to best protect themselves

Anna Mamwell

November 30, 2020

Immunocompromised, how to self-isolate during the COVID-19 outbreak

Anna Mamwell

November 27, 2020

How do you decide what clinical trial to pick?

Gail Roboz

November 25, 2020

Did you disagree with your doctor about your treatment?

Anna Mamwell

November 23, 2020

What emerging dynamics could impact care in acute myeloid leukemia?

Gail Roboz

November 20, 2020

What thoughts did you have while undergoing acute myeloid leukemia treatment?

Anna Mamwell

November 18, 2020

Do you have regrets about your treatment and time in hospital?

Anna Mamwell

November 12, 2020

What clinical trials look at molecular relapse?

Gail Roboz

November 11, 2020

What monitoring requirements were most challenging?

Anna Mamwell

November 9, 2020

What options are there for patients with the SRSF2 mutation?

Gail Roboz

November 6, 2020

What has been your most successful acute myeloid leukemia trial to date?

Gail Roboz

November 2, 2020

What research is ongoing in patients with ‘incurable’ acute myeloid leukemia?

Gail Roboz

September 30, 2020

Are CAR T-cell treatments likely to become available for acute myeloid leukemia?

Gail Roboz

September 28, 2020

Are there clinical trials targeting the NPM1 gene specifically?

Gail Roboz

September 28, 2020

How can patient input shape research?

Lars Bullinger

September 24, 2020

Does the fear of acute myeloid leukemia coming back and relapsing ever go away?

Anna Mamwell

September 23, 2020

How did you care for your partner during his treatment for acute myeloid leukemia?

Dorcas Hills

September 22, 2020

What adjustments did you make to accommodate being a carer?

Dorcas Hills

September 18, 2020

How has becoming a carer affected your life?

Dorcas Hills

September 17, 2020

What are the recent discoveries in clinical trials for acute myeloid leukemia?

Gail Roboz

September 17, 2020

How did you learn about new treatments being developed in acute myeloid leukemia?

Anna Mamwell

September 17, 2020

What is GvHD, and how does it affect daily life?

Regis Peffault de Latour

September 9, 2020

What support did you find most useful after diagnosis?

Anna Mamwell

September 9, 2020

What symptoms of acute myeloid leukemia did you have? Did any remain after treatment?

Anna Mamwell

September 8, 2020

How did you cope with isolation while being in the hospital?

Anna Mamwell

September 8, 2020

How involved were you in your treatment selection?

Anna Mamwell

September 8, 2020

What are the takeaways for patients from the EBMT 2020 meeting?

Chris Lewis

September 2, 2020

What updates are there on the VIALE-C trial for acute myeloid leukemia patients?

Andrew Wei

July 16, 2020

How can big data help to better classify acute myeloid leukemia subtypes?

Lars Bullinger

June 17, 2020

What were the key takeaways on trials from ASH 2019?

Agnieszka Wierzbowska

December 12, 2019

How should patients interpret the results being presented at ASH?

Linda House

December 12, 2019

How can more patients access novel agents sooner?

Charles Craddock

December 9, 2019