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Know AML is the first global education and awareness initiative that provides patients and caregivers with the information, resources, and support they need to deal with acute myeloid leukemia.
Know AML aspires to facilitate and improve acute myeloid leukemia knowledge worldwide and develop community-based initiatives to overcome current and future challenges.
The mission of Know AML is to drive education and awareness of acute myeloid leukemia globally through community collaborations, while continuing to raise awareness of the resources and support currently available.
Know AML have identified a number of activities that fall within three key areas: awareness, education, and engagement.
Acute Myeloid Leukemia World Awareness Day and Blood Cancer Awareness Month remain our core awareness raising focal points, alongside other internationally recognized events targeted to the healthcare community.
In 2024–2025, Know AML will continue to educate the patient and caregiver community on the latest treatment advances in acute myeloid leukemia. This will involve providing updates around what the healthcare and scientific community are talking about in the field, including discussions on real-world evidence and survival information.
Know AML will also communicate the terminology used by the healthcare and scientific community that is relevant to acute myeloid leukemia in patient-friendly formats, ensuring patients and caregivers can understand and act on the information they receive.
In addition, Know AML aims to create innovative ways of sharing patient and caregiver experiences. Social media will be used to amplify our presence in this space and advocate for the experiences of those whose lives are affected by acute myeloid leukemia.
Help us raise the patient voice and reach a wider audience in 2024 and beyond!
Know AML was founded in partnership with CancerCare in 2017 and, since 2023, runs in collaboration with ALAN. ALAN is an independent global network of patient organizations, dedicated to changing outcomes of patients with acute leukemia by strengthening patient advocacy in that area. It aims to build capacity in the members of the network to deliver tailored services to patients with acute leukemia and their caregivers on the national level, while joining forces between organizations on the policy and research level across countries.
Know AML is brought to you by Scientific Education Support (SES). SES loves nothing more than building networks and working with communities to facilitate education through collaboration, ensuring that patients have access to the latest information, support, and treatment options. SES assists the ambassador group by handling the day-to-day running of the initiative, which includes content generation, everyday management, and keeping the Know AML website up to date.
Know AML is proud to be connected with Rare Diseases International (RDI). RDI provides a strong common voice for persons living with a rare disease and their families around the world, covering all rare diseases. Know AML is a stakeholder of RDI and part of the RDI community.